Late Presentation of HIV / Infected not yet Diagnosed

Project Period
2009-2011

Summary
LATE PRESENTATION OF HIV
Late Presentation Definition - Background
A common definition of the term "late presenter" is essential if late presentation is to be more effectively dealt with by public health authorities across Europe and elsewhere. Two initiatives, HIV in Europe and the "Late presentation for HIV treatment on Europe" joined efforts in Spring 2009 to identify a common definition of a patient presenting late for care.

Surveillance to identify the exact extent of the problem of late diagnosis of HIV has been complicated because there existed more than 20 different definitions. A common definition will make the problem of late presentation more “visible”, improve surveillance data and comparison between countries, facilitate identification of risk factors in a common way, and serve as a quality control marker for public health policies and academic initiatives promoting earlier diagnosis.

Presentations and Publications
European late presenter working group: Late presentation of HIV infection: A consensus definition, HIV Medicine 2010, Published Online: 17 Jun 2010

INFECTED NOT YET DIAGNOSED
Introduction
Surveillance to identify the exact extent of the number of undiagnosed people living with HIV remains insufficient across Europe. Different estimation approaches exist, using different sources of data, and many countries do not appear to produce any estimates.

Objectives
A project group led by Andrew Phillips, UCL worked to create a guidance document for countries on data requirements and available methods for estimation of the number of people with HIV. The document outlines all availabl approaches and provides the necessary guidance for using them. It is a first step towards a coordinated European approach.  

Presentations and Publications
HIV in hiding: Methods and data requirements for the estimation of the number of people living with undiagnosed HIV. Working Group on Estimation of HIV Prevalence in Europe, AIDS 2011

Main Partners
Late Presentation of HIV
National Institute for Infectious Diseases Italy
Aids Fonds & Soa Aids Nederland, the Netherlands,
INSERM, Paris, France
European AIDS Treatment Group, Brussels, Belgium
National University Hospital and Univ. of Copenhagen, Copenhagen HIV Programme, Panum Institute, Denmark
Clinical Institute of Medicine & Dermatology, Hospital Clinic, University of Barcelona, Spain
University College London Medical School, Royal Free Campus, UK
Department of Medicine, San Paolo Hospital, Italy
Medizinischen Universitätsklinik, Innere-Rheuma-Tropen Ambulanz, Germany
Department of Infectious Diseases, Karolinska Institutet, Sweden
HIV Monitoring Foundation, the Netherlands
Royal Free Hampstead NHS Trust, UK

Infected not yet diagnosed
University College London, UK
INSERM U897, France
Center for Communicable Diseases and Infection Control, Public Health Agency of Canada, Canada
MRC Biostatistics Unit, UK
INSERM U943, France
WHO Regional Office for Europe, Denmark
Imperial College London, UK
UNAIDS, Switzerland
National Centre in HIV Epidemiology and Clinical Research, Australia
University of Copenhagen, Copenhagen, Denmark
Centers for Disease Prevention and Control, USA
European Centre for Disease Prevention and Control, Sweden
Futures Institute, USA