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HIV Indicator Diseases Study - Newsletter
Issue No. 1 - December 2009
HIV Indicator Diseases Across Europe 
The first patient was enrolled in the indicator diseases study on 21 October 2009 in Belgium.  


  • Form B, Section E should be filled in for all patients enrolled regardless of serostatus.
  • Source documentation is not needed for section C1 and E but can be based on patient interviews.
  • It is important that the participating sites include those patients that they considerer falling under the definition of each indicator disease.
  • Centres are kindly asked to keep track of the number of patients approached, using the enrolment list.
Overview of participating sites
Cervical or anal dysplasia or cancer
GERMANY,  Uniklinikum Essen, Hautklinik, Stefan Esser   
NETHERLANDS, Amsterdam, Onze Lieve Vrouwe Gasthuis, Kees Brinkman
UK, London, ChelseaWestminster Hospital, Ann Sullivan
Hepatitis B or C virus infection
CROATIA, Zagreb, University Hospital of Infectious Diseases, Josip Bergovac   
GERMANY, Bonn, Department of Medic, University of Bonn, Outpatient Hepatology, Ursula Pohlmann, Jürgen Rockstroh   
ITALY, Milan, Liver Unit, San Paolo Hospital, Massimo Zuin    
SWEDEN, Stockholm, Karolinska University Hospital, Anders Sönnerborg   
UKRAINE, Kharkov Regional Clinic of Infectious Diseases, Maksym Krasnov  
Herpes Zoster
AUSTRIA , Innsbruck, University Hospital Innsbruck, Department of Dermatology and Venereology, Robert Zangerle  
BELARUS, Minsk Municipal Infectious Diseases Hospital, Anna Vassilenko
POLAND, Bialystok, Medical University of Bialystok, Anna Grzeszczuk
SPAIN, Barcelona, Hospital Clinic Barcelona, Felipe Garcia, José Gatell
Leukocytopenia or thrombocytopenia
ITALY,  Milan, Hemathology Unit, San Paolo Hospital, Gianmarco Podda, Antonella D'Arminio Monforte  
NETHERLANDS, Amsterdam, Onze Lieve Vrouwe Gasthuis
POLAND, Bialystok, Medical University of Bialystok
SPAIN, Barcelona, Hospital Clinic Barcelona   
UK, London, ChelseaWestminster Hospital   
Malignant Lymphoma
BOSNIA, Clinical Center, University of Sarajevo, Vesna Hadziosmanovic   
DENMARK, Århus, CESOIRS/Skejby Sygehus, Søren Fangel    
GERMANY, Department of Medicine, University of Bonn, Ingo Schmidt-Wolf
NETHERLANDS, Amsterdam, Onze Lieve Vrouwe Gasthuis
POLAND, Bialystok, Medical University of Bialystok
UK, London, ChelseaWestminster Hospital  
Ongoing mononucleosis-like illness
BELARUS, Minsk Municipal Infectious Diseases Hospital 
BOSNIA, Sarajevo, Clinical Center, University of Sarajevo
CROATIA, Zagreb, University Hospital of Infectious Diseases   
SPAIN, Barcelona, Hospital Clinic Barcelona
UKRAINE, Kharkov, Kharkov Regional Clinic of Infectious Diseases  
Seborrheic dermatitis/exanthema
AUSTRIA, Innsbruck, University Hospital Innsbruck
BELGIUM, Brussels, Saint-Pierre University Hospital, Josette André, Nathan Clumeck
DENMARK, Århus, CESOIRS/Skejby Sygehus 
NETHERLANDS, Amsterdam, Onze Lieve Vrouwe Gasthuis
SPAIN, Barcelona, Hospital Clinic Barcelona, Infectious Diseases Unit   
Sexually Transmitted Diseases
BELGIUM, Brussels, Saint-Pierre University Hospital
DENMARK, København, Bispebjerg Hospital, Hanne Sørensen  
ITALY, Milan, STD Centre, Dermatology department, Marco Cuisini UK, London, ChelseaWestminster Hospital 

15 January 2009
: Send in all completed CRFs for enrolled patients by fax, mail or e-mail

Investigator TC - 5 February 13:00 CET or 10 February 16:00 -
please cast your vote at the doodle here

Please send an email before 15 January on how many patients you expect to enrol before 1 March and any problems you've experienced carrying out the surveys to

Download CRF here

HIV in Europe 2009 Conference, 2nd and 3rd of November, The Nobel Forum, Stockholm
The HIV in Europe Conference, held under the auspices of the Swedish Presidency of the European Union on 2-3 November 2009 at the Nobel Forum in Stockholm, Sweden, gathered key European constituencies to discuss the prevailing obstacles to testing and present concrete results derived from the initiative. The ultimate and long term aim of the initiative is to decrease the number of HIV patients presenting late for care.

One of the first important outcomes of the HIV in Europe initiative has been the initiation of a consensus process in order to identify and begin to implement a unified definition of late presentation. The definition, presented at the Stockholm conference, is an individual presenting with a CD4 count below 350 or with an AIDS diagnosis.  See more

The conference was well attended with 36 civil society representatives, 34 researchers/health professionals, 22 policy makers and 9 industry sponsors from 25 countries (15 EU, 10 outside EU).

Results of the ongoing projects will be published in 2010 and presented at international conferences and via the HIV in Europe website.

Investigator meeting at EACS

An investigator meeting was held during the EACS conference in Cologne with the participation of 7 sites. Discussions were based on country experiences and queries on performance - see FAQs.